The Center for Cerebellar Malformations

 

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Joubert Syndrome Links

 

Support Organizations

       Joubert Syndrome Foundation & Related Cerebellar Disorders

       The Arc

       -support for all types of mental retardation

       The Sibling Support Project

       -sibling support for all types of mental retardation

 

Research & Information

       Gleeson Lab

       NINDS (National Institute of Neurological Disorders & Stroke)

       NLM (National Library of Medicine)  

       NORD (National Organization for Rare Disorders)

       OMIM (Online Mendelian Inheritance in Man)

 

More links coming soon!

 

v    What is Joubert Syndrome?

v    Treatment and Prognosis

v    Current Research

v    How can I get involved?